Another good day of nothing doing. He did have a couple fevers today, but the usual Tylenol did the trick. So lets take a moment and reflect on some of the better moments of the journey... even when Kev was down.
On one of our many journeys back to the GMC for Kev's shot, I decided to take a path less traveled that I thoughts was more direct (faster). It was faster, but it turns out it was only faster because my right foot went down farther (i.e. speeding). Kev was having a relatively rough morning, so my foot went down extra far on this particular day. This didn't go unnoticed... WE got pulled over. Immediately Kev reached for the aptly named "puke bucket" and I asked, "are you not feeling well?" He replied, "I'm good, just get ready." As the officer approached the vehicle he noticed me (not so nervous since this happens to me all the time, but a bit ruffled) and Kev all pale and bald with a frown and a puke bucket. When asked why I was speeding, my brother replied, "We're on our way to get Chemo at the Knapper Clinic." This was not the truth, but it worked! He said be careful and we went on our merry way. Score one for the good guys.
Always one step ahead of his little brother... thank goodness!
Wednesday, December 26, 2007
Tuesday, December 25, 2007
Merry Christmas
We had a pretty good Christmas and hope everyone else did too. It was full of great gifts and wonderful naps. Kev spiked a small fever about his normal time, but nothing a little Tylenol couldn't cure. We do not have much planned this week which is a good thing for Kev. A home health care Nurse is coming to get started on the physical therapy... Kev is looking forward to getting back on his feet, but knows it will be an arduous task. Send motivation and encouragement!
Monday, December 24, 2007
in the nick of time...
Dr. Khan came in this morning discussing Kev's fevers. We figured it was going to lead to another few days at the GMC. On the contrary, they now know the source of the fevers, prescribed two different types on Anti-Biotics, and sent us home!
Home for Christmas... terrific. Kev is doing well, but has some terrible pain that should go away when his white count is back to normal and the anti-biotics kick in. We got Kev some pretty cool gifts that should cheer him up and of course that he will be able to give gifts, which is his favorite part. We are now in the final phase of recovery!
We would like to wish everyone who has been involved with this blog, and those who send cards, and packages, and persistent texts and phone calls (even though they may not have been returned) a very Merry Christmas! Our fear was people would taper off as the battle to remission dragged on, but you are all a committed bunch. It may not seem like much is being accomplished, but the effort is noticed and certainly appreciated. Please stay committed to our Kev and know the hard part is yet to come, Physical Therapy and rehab. We've come along way and still need to follow those 8greenlights to remission!
Merry Christmas from the Seely Family and we hope you have a wonderful day full of cheer, beer, and gift receipts!
Home for Christmas... terrific. Kev is doing well, but has some terrible pain that should go away when his white count is back to normal and the anti-biotics kick in. We got Kev some pretty cool gifts that should cheer him up and of course that he will be able to give gifts, which is his favorite part. We are now in the final phase of recovery!
We would like to wish everyone who has been involved with this blog, and those who send cards, and packages, and persistent texts and phone calls (even though they may not have been returned) a very Merry Christmas! Our fear was people would taper off as the battle to remission dragged on, but you are all a committed bunch. It may not seem like much is being accomplished, but the effort is noticed and certainly appreciated. Please stay committed to our Kev and know the hard part is yet to come, Physical Therapy and rehab. We've come along way and still need to follow those 8greenlights to remission!
Merry Christmas from the Seely Family and we hope you have a wonderful day full of cheer, beer, and gift receipts!
Sunday, December 23, 2007
as expected...
Well the weekend events were no surprise to us... we ended up back in the hospital, room 839. The very same room we just left. It worked out though since the 5 ft. Ginger bread man we created still hung on the door with that weird grin on his face like he knew we would be back.
Kev spiked a fever on Friday night that caused us to pack up our comfortable hotel room and head to the ER. We called ahead and they put us in the "fastrack" so we had our room back and were sleeping by 2:30 in the a.m., which is good compared to last time. Kev had another fever last night and one again tonight. He has already received blood and platelets, so the numbers are up from the last go around. He is still very low in all his counts, but fevers equal hospital stays. By the looks of things, Santa will be visiting the Seely's at the GMC. It may sound bad, but Kev is actually doing quite well. He fights the occasional nausea and fever, but otherwise feels fine. Time will tell, once his whites are up the fevers, pain, and nausea should stop.
On a side note Dad is feeling better and will be rejoining the family tomorrow after work. No complaints just positive thoughts. Soon starts the final rehab stage, it will be nice to get away from the food channel for a bit.
Kev spiked a fever on Friday night that caused us to pack up our comfortable hotel room and head to the ER. We called ahead and they put us in the "fastrack" so we had our room back and were sleeping by 2:30 in the a.m., which is good compared to last time. Kev had another fever last night and one again tonight. He has already received blood and platelets, so the numbers are up from the last go around. He is still very low in all his counts, but fevers equal hospital stays. By the looks of things, Santa will be visiting the Seely's at the GMC. It may sound bad, but Kev is actually doing quite well. He fights the occasional nausea and fever, but otherwise feels fine. Time will tell, once his whites are up the fevers, pain, and nausea should stop.
On a side note Dad is feeling better and will be rejoining the family tomorrow after work. No complaints just positive thoughts. Soon starts the final rehab stage, it will be nice to get away from the food channel for a bit.
Thursday, December 20, 2007
Pine Barn Inn
It was another day of nothingness, but we did find the time to wrap some christmas gifts and put them under the tree. Kev was more of a supervisor than a participant. He even gave advice on where to place the gifts under the tree. He also received lots of great packages in the mail, which is enough to cheer anyone up.
We had a 4 o'clock appointment today because Kev had enough with the driving and we booked a room at the Pine Barn Inn. It's quaint little getaway that shares a parking lot with GMC. This is the closest Kev has been to normal, back in a hotel room where he is the most comfortable. Not flying anywhere though, but he did take a nice Adavan - Ambien cocktail before bed and should be flying pretty good throughout the night.
Tomorrow is another Neupogen shot then blood work. The blood results will let us know what kind of christmas it is going to be for Kev. Either he carries on as is, or he will drop like a sack of potatoes and spend the next few days in a horizontal position. We tentatively have plans to stay here at the PBI for another night since Dad has come down with a bit of a head cold! It all comes in threes so no one else should be getting sick for the rest of the way.
That's it, keep'm crossed the blood comes back looking good.
We had a 4 o'clock appointment today because Kev had enough with the driving and we booked a room at the Pine Barn Inn. It's quaint little getaway that shares a parking lot with GMC. This is the closest Kev has been to normal, back in a hotel room where he is the most comfortable. Not flying anywhere though, but he did take a nice Adavan - Ambien cocktail before bed and should be flying pretty good throughout the night.
Tomorrow is another Neupogen shot then blood work. The blood results will let us know what kind of christmas it is going to be for Kev. Either he carries on as is, or he will drop like a sack of potatoes and spend the next few days in a horizontal position. We tentatively have plans to stay here at the PBI for another night since Dad has come down with a bit of a head cold! It all comes in threes so no one else should be getting sick for the rest of the way.
That's it, keep'm crossed the blood comes back looking good.
Wednesday, December 19, 2007
nothing
The joy of nothing. We went to Kev's 12:00 appointment got his Neupogen shot and left 10 minutes later. Then it was home, the couch and absolutely nothing.
Kev has no fever, no pain, no reason at all to be alarmed about anything. His color looks good and his mind is sharp. We deterred a bit from the food channel today for a change of pace, but other than that it's business as usual... waiting to get knocked down so he can just get right back up!
Kev has no fever, no pain, no reason at all to be alarmed about anything. His color looks good and his mind is sharp. We deterred a bit from the food channel today for a change of pace, but other than that it's business as usual... waiting to get knocked down so he can just get right back up!
Tuesday, December 18, 2007
so for so good
Ma took Kev for his first voyage back for Neupogen... not bad. He took the card ride really well and they even made a some stops on the way home. We go again tomorrow at 12 and hope things go as well. Kevs are dropping FAST. Just getting up off the couch is proving to be a task, but at least he still can on his own for now.
He still has an appetite and is drinking a lot on his own. No fever or pain yet and he is sleeping quite well due to some "borrowed" items from the hospital. Kev is a little down since he would be rather doing his most favorite thing of all... buying things for other people. So you may not get the usual thoughtful gift from Kev this year, but be prepared for what he has coming next year!
Keep'm crossed they drop nice and easy!
He still has an appetite and is drinking a lot on his own. No fever or pain yet and he is sleeping quite well due to some "borrowed" items from the hospital. Kev is a little down since he would be rather doing his most favorite thing of all... buying things for other people. So you may not get the usual thoughtful gift from Kev this year, but be prepared for what he has coming next year!
Keep'm crossed they drop nice and easy!
Monday, December 17, 2007
homeward bound
Kev is home, we left pretty late from the hospital, but we're home. All he needed today was his mezznin (they call it a buffer for his kidneys and what not) then we left. The medication this time out is very minimal, but still a significant amount. The doctors say Kev will be Neutropenic towards the weekend or early next week. He will hit rock bottom, nut not nearly as low as he hit the last time. Neutropenia is inevitable considering he was just loaded full of chemo for 5 days straight three times a day... it really is something.
He has some areas we need to keep a close look at while he is home, along with the usual fever, shiver, pain stuff. There is a chance we may be spending Christmas at the GMC, but Kev has come so far it doesn't really matter. To have fought this hard then be stubborn because we want to spend christmas at home would be ridiculous. We've made a lot of friends on that hill, it may even be fun and we know Kev will be in good hands.
The lastround was not that bad for Kev, he kept his color and got another surprise visitor... Jennifer Chrans from Texas. She was an old roommate and a tremendous girl. She is a bit of a smartass, but that only means she fit in really well the family. Her and Kev have been through a lot together so it was really nice having her around. Albeit Northeastern Pennsylvania is wonderful this time of year with snow and ice storms, she still made the trip and was content doing what we do best lately... eating food and watching food. Amazing girl and even better friend (now of the whole Seely family) Wish her luck if you see her, she's running a marathon (26 stickn' miles) CRAZY!!
He has some areas we need to keep a close look at while he is home, along with the usual fever, shiver, pain stuff. There is a chance we may be spending Christmas at the GMC, but Kev has come so far it doesn't really matter. To have fought this hard then be stubborn because we want to spend christmas at home would be ridiculous. We've made a lot of friends on that hill, it may even be fun and we know Kev will be in good hands.
The lastround was not that bad for Kev, he kept his color and got another surprise visitor... Jennifer Chrans from Texas. She was an old roommate and a tremendous girl. She is a bit of a smartass, but that only means she fit in really well the family. Her and Kev have been through a lot together so it was really nice having her around. Albeit Northeastern Pennsylvania is wonderful this time of year with snow and ice storms, she still made the trip and was content doing what we do best lately... eating food and watching food. Amazing girl and even better friend (now of the whole Seely family) Wish her luck if you see her, she's running a marathon (26 stickn' miles) CRAZY!!
Sunday, December 16, 2007
the home stretch
Today is Kevin's last chemo treatment. not for this month, not for this week, but for good. 2 and half months that seemed like a lifetime. The treatments were intense, extremely tough on both body and mind. but Kev never complained, not once. His "whatever it takes" attitude was an inspiration to all of us. Day in and day out we watched the punishing effects of Chemo. Kev endured fatigue, boredom, and tons of medication .. to name a few of the milder ones. Again, Kev, "Whatever it takes."
He should be coming hom in the next day or two. Then back to the daily hour and a half trips to the GMC for the one minute Neupogen shot to boost the white cell count, BUT home for the holidays. In mid-January we are coming back for re-staging, a CT scan and an MRI to see where the beast we call cancer is. If his appearance and strength are any indication... it's gone. All the nurses comment on how good he looks, personally I think there are some crushes going on, they seem to make special trips in to see how Kev is doing.
Physical Therapy is next, we'll be working hard on getting him in tip-top shape. The Bike, the treadmill, and weights, "it isn't going to be pretty!"
Prayers, thoughts, crossed fingers and toes for "Great in 08"
-Dad
He should be coming hom in the next day or two. Then back to the daily hour and a half trips to the GMC for the one minute Neupogen shot to boost the white cell count, BUT home for the holidays. In mid-January we are coming back for re-staging, a CT scan and an MRI to see where the beast we call cancer is. If his appearance and strength are any indication... it's gone. All the nurses comment on how good he looks, personally I think there are some crushes going on, they seem to make special trips in to see how Kev is doing.
Physical Therapy is next, we'll be working hard on getting him in tip-top shape. The Bike, the treadmill, and weights, "it isn't going to be pretty!"
Prayers, thoughts, crossed fingers and toes for "Great in 08"
-Dad
Thursday, December 13, 2007
day 2
Full steam ahead into the final stage. It was a day full of absolutely no excitement whatsoever. There was a large amount of chatter from the folks outside this building we're in about the the snow and ice, but other than that... nothing. Kev said he slept well and that is always good. The Doctors came in (the one that looks like a slimmer version of the fat guy in laurel and hardy) and Kev brought up the Intrathecal dilemma and he said depending on results he may not have to worry about them anymore. This made Kev pretty happy since, as you could imagine, he is not looking forward to future needle in the spine appointments. Keep'm crossed there's truth to that.
Other news... well, there is none. We watched TV, ate food, and pooped... like puppies, not real productive, but darn cute!
Ma is feeling better and should be back to normal tomorrow afternoon. We are going to decorate the door to Kev's room since we showed up after decorating day. Still brainstorming, but there is a safe bet it will be something christmasy.
keep'm crossed, so far so good!
Other news... well, there is none. We watched TV, ate food, and pooped... like puppies, not real productive, but darn cute!
Ma is feeling better and should be back to normal tomorrow afternoon. We are going to decorate the door to Kev's room since we showed up after decorating day. Still brainstorming, but there is a safe bet it will be something christmasy.
keep'm crossed, so far so good!
Wednesday, December 12, 2007
swing and a miss...
We made our 3 o'clock appointment with little warning. They took Kev directly when we arrived and it all seemed good. They tried to get a good fluid return from his spine, but they couldn't find a spot. They tried again, no luck! They re-numbed him and stabbed his spine a third time, not enough fluid. They were pretty determined, considering over an hour had passed and they kept failing to find what they were looking for! They stabbed a needle into Kev's spine one last time and Kev had to call the dogs off. Failed attempt after failed attempt put Kev in a very miserable and painful situation.
He had this treatment 6 times before and things went O.K., but his last procedure was done on Friday... presumably there was not enough time for the natural spinal fluids to rejuvenate, not sure, we'll know more tomorrow after rounds. After the spinal debacle we cruised up to BP 839 and started the first of the 5 day regiment.
On a side note, Ma has strep-throat and is really under the weather. She has worked so hard taking care of everyone else she forgot about herself. Lots of rest and she'll be O.K. and back in charge.
We've had a rough start to the final leg in the race, but a on a positive note, Kev was able to purchase TWO brand new winter tires for just $179.00 american dollars!
He had this treatment 6 times before and things went O.K., but his last procedure was done on Friday... presumably there was not enough time for the natural spinal fluids to rejuvenate, not sure, we'll know more tomorrow after rounds. After the spinal debacle we cruised up to BP 839 and started the first of the 5 day regiment.
On a side note, Ma has strep-throat and is really under the weather. She has worked so hard taking care of everyone else she forgot about herself. Lots of rest and she'll be O.K. and back in charge.
We've had a rough start to the final leg in the race, but a on a positive note, Kev was able to purchase TWO brand new winter tires for just $179.00 american dollars!
Tuesday, December 11, 2007
all good...
Today could have been a long terrible day of sitting around and thinking about tomorrows events, but instead it was a very good day. Anthony came for breakfast and helped get things around. We watched the the view and Paula Dean. Anthony is a big eater and it was a nice change of pace for him to see how the stuff is made. It's never bad to have him around.
Later in the afternoon a couple of Kev's friends stopped by, Mark and Scott. Two very upstanding gentlemen who drove almost 4 hours to visit for the afternoon. We know very little about these two men, but if you see Scott Lamm (scott) or Mark Gonsalves(gonzo) be sure to shake their hands and enjoy who they are for a bit. They successfully brought the famous smile back to Kev's face that he has been missing for the last couple days! That is enough to warm any one's heart and to solidify a nice spot on our christmas list (next year). Instead of laying around worrying, Kev laid around laughing!
He went to bed pretty well drugged up so he should sleep well in his last night at home for a while. Tomorrow it starts!! so stay positive for Kev and for pete's sake put some change in Salvation army Santa's tin!
NOTE: Simone, tell your Mom Kev needs Kinder Hippo's to make it through this last round!
Later in the afternoon a couple of Kev's friends stopped by, Mark and Scott. Two very upstanding gentlemen who drove almost 4 hours to visit for the afternoon. We know very little about these two men, but if you see Scott Lamm (scott) or Mark Gonsalves(gonzo) be sure to shake their hands and enjoy who they are for a bit. They successfully brought the famous smile back to Kev's face that he has been missing for the last couple days! That is enough to warm any one's heart and to solidify a nice spot on our christmas list (next year). Instead of laying around worrying, Kev laid around laughing!
He went to bed pretty well drugged up so he should sleep well in his last night at home for a while. Tomorrow it starts!! so stay positive for Kev and for pete's sake put some change in Salvation army Santa's tin!
NOTE: Simone, tell your Mom Kev needs Kinder Hippo's to make it through this last round!
Monday, December 10, 2007
No news is good news
not a real productive day for Kev. Spent most of it on the couch. No fever, no pain, nothing at all. We mixed things up a bit and watched TLC for a small portion of the afternoon, but we ended up were we belong, with Rachael and Paula.
Thats it... keep it positive and send it this way!
Thats it... keep it positive and send it this way!
Sunday, December 9, 2007
up to speed
Well... long weekend to say the least! This Friday started a long list of things that happened over the weekend. Mom and I were supposed to split the duties on Friday as she was going to take Kev to get his spinal tap (performed by a black British doctor from Nigeria) and I was supposed to take dad to Bloomsburg for his "procedure". I ended up with a severe sinus infection that caused me to be in bed all day Friday and Saturday. Mom did take Kev and Bri had to take Dad. Ma was the only healthy one left to hold the house together... which she usually does anyway, but we help a little (I think). All in all Ma did well and everyone is feeling better.
Kev held strong after the spinal tap, he only had some minor fevers here and there that a little Tylenol could handle. He is still eating very well and has gotten quite mobile. Today he and dad went Grocery shopping. Kev cruised around on one of them rockn' little scooter things while dad gimped around and shopped. He feels normal as normal can be for his situation, but not looking forward to the last go round... who would. Focus all your positive thoughts and feelings on Kev, he's gonna need the support for this last one!
Kev held strong after the spinal tap, he only had some minor fevers here and there that a little Tylenol could handle. He is still eating very well and has gotten quite mobile. Today he and dad went Grocery shopping. Kev cruised around on one of them rockn' little scooter things while dad gimped around and shopped. He feels normal as normal can be for his situation, but not looking forward to the last go round... who would. Focus all your positive thoughts and feelings on Kev, he's gonna need the support for this last one!
Wednesday, December 5, 2007
nothing - part 2
Another good day of doing nothing. Kev actually woke up today for first time in a long while and said he slept good. Tonight he got the same cocktail and off to bed for hopefully another good nights rest.
Shopping was postponed today due to weather... snowed all day! We instead ordered Chinese and watched the cooking channel.
Tomorrow it all starts. We have an 8 o'clock blood work appointment followed by a quick overview by the Doctors before we get the date to start the last round. The appointment is early, but at least that means we won't be sitting around waiting for and hour before we get seen. We should also be home in time for Sandra Lee's Semi-Homemade and Paula Dean. If we somehow get home around Rachael Ray's 30 minute meals something went wrong. If we miss that little Italian girl with all the cleavage, then something really went wrong and what a shame it would be to miss her "show"!
keep'm crossed the blood looks good!
Shopping was postponed today due to weather... snowed all day! We instead ordered Chinese and watched the cooking channel.
Tomorrow it all starts. We have an 8 o'clock blood work appointment followed by a quick overview by the Doctors before we get the date to start the last round. The appointment is early, but at least that means we won't be sitting around waiting for and hour before we get seen. We should also be home in time for Sandra Lee's Semi-Homemade and Paula Dean. If we somehow get home around Rachael Ray's 30 minute meals something went wrong. If we miss that little Italian girl with all the cleavage, then something really went wrong and what a shame it would be to miss her "show"!
keep'm crossed the blood looks good!
Tuesday, December 4, 2007
nothing
Today we woke up, at home, and had nothing to do.... at all. This was the first time since this whole ordeal started that we had nothing to do. It was really boring. Kev had a rough night sleeping from the student driven spinal tap. In a bit of irony, he was unable to fully fall asleep since he was constantly expecting someone to barge in the room to check his vitals or steal some blood. Like most parents would, Dad offered to periodically pop in and disrupt his sleep, but Kev decided against it.
We ate well today and he looks great. His walking has improved a lot. We went from a cane to a wheel chair, back to the cane, then the wheel chair again, stuck for a while on a walker, now we're back on the cane... not bad. His prescriptions are minimal this time around, but we know that won't last long. Tomorrow we have tentative plans of going into public and do some Christmas shopping. Usually we get a few adult beverages in us to loosen the wallets, but not this year. Hope everyone likes those awesome McDonald's coupon books!
We ate well today and he looks great. His walking has improved a lot. We went from a cane to a wheel chair, back to the cane, then the wheel chair again, stuck for a while on a walker, now we're back on the cane... not bad. His prescriptions are minimal this time around, but we know that won't last long. Tomorrow we have tentative plans of going into public and do some Christmas shopping. Usually we get a few adult beverages in us to loosen the wallets, but not this year. Hope everyone likes those awesome McDonald's coupon books!
Monday, December 3, 2007
home
We woke up to a new doctor, but the same results... "everything is good on our end." That is what we have been hearing and it doesn't get old. Kev had another Intrathecal treatment today and thy seem to be getting worse. The first one was great, but Geisinger is a learning hospital and sometimes Kev is the victim of a student project. They had a rough go of things and had to start from scratch today. Kev said it was "awful", but thats it.
His appetite is still hanging tough and the one thing that was making him feel a bit sick was changed to a lighter dose, so all should be well this week. Kev just has to relax and build up some strength for the big finish!
His appetite is still hanging tough and the one thing that was making him feel a bit sick was changed to a lighter dose, so all should be well this week. Kev just has to relax and build up some strength for the big finish!
Sunday, December 2, 2007
nearing the finish...
normal weekend ... spent in a hospital. Kev is looking real good and walking quite well at the moment. He is scheduled for another Intrathecal treatment tomorrow and then we are out of here until Friday and we do not have to come back in between.
The initial plan was to make up the Intrathecals after all the treatment is complete, but they finally recognized Kev's tenacity to get it done. After Friday he only has two more! The doctors are very impressed that they have been able to give Kev the full dose of chemo each session. Often times, individuals in his condition can't handle the full strength, his body has recovered well each and every time. There is only one more round left! The final round is a rough one so we're going to strengthen him up this week so he is ready to take it on again.
The only thing still lingering about is that @$%#! throat stuff! Gonna be a good week home, but that makes it all the more rough to go back in. Send words of encouragement, but don't make it mushy stuff... levity goes a long way!
The initial plan was to make up the Intrathecals after all the treatment is complete, but they finally recognized Kev's tenacity to get it done. After Friday he only has two more! The doctors are very impressed that they have been able to give Kev the full dose of chemo each session. Often times, individuals in his condition can't handle the full strength, his body has recovered well each and every time. There is only one more round left! The final round is a rough one so we're going to strengthen him up this week so he is ready to take it on again.
The only thing still lingering about is that @$%#! throat stuff! Gonna be a good week home, but that makes it all the more rough to go back in. Send words of encouragement, but don't make it mushy stuff... levity goes a long way!
Thursday, November 29, 2007
the plan
Apparently Kev had a plan the whole time to avoid the constant trips back and forth and a possible stay at the House of Care. His plan was to spike a fever around midnight, spend 5 and a half hours in the emergency room, then shack right back up into our old room - 833. This may sound terrifying, but Kev had already popped to Ambien and they were pushing Morphine into him when we arrived... so maybe not so bad.
They ran a bunch of tests, stole a lot of blood, and filled him with fluids. All in all he was O.k., this just seems to be a repeat of the last time we went through this type of treatment. There seems to be some unwanted characters on his backside that are causing all the problems. Diagnosis is to wait for his whites to come back up and then we're back to normal.
Tomorrow he has a quick Vinchristine (chemo) treatment followed by another spinal tap. Gonna be a long day, but Kev feels his best when they a pumping him full of chemo.
They ran a bunch of tests, stole a lot of blood, and filled him with fluids. All in all he was O.k., this just seems to be a repeat of the last time we went through this type of treatment. There seems to be some unwanted characters on his backside that are causing all the problems. Diagnosis is to wait for his whites to come back up and then we're back to normal.
Tomorrow he has a quick Vinchristine (chemo) treatment followed by another spinal tap. Gonna be a long day, but Kev feels his best when they a pumping him full of chemo.
Wednesday, November 28, 2007
road dawgs
Kev was able to leave the Hospital yesterday, BUT we have to return everyday through the weekend for small bouts of chemo, blood work, and neupogen shots (to increase the white count). In this whole process the one thing that Kev dreads the most are the trips back to GMC (hour 15, round trip) for a simple shot. The car rides in the past have made him quite ill, which lead to being readmitted. To counteract this, we will be staying at the 'House of Care' on the Geisinger grounds for a small donation. Not entirely sure what this means, but at least we will be closer should any complications occur.
Kev is actually looking pretty good at the moment, but his counts are dropping fast! He prefers to be at GMC when is counts are low because even the simplest of tasks prove difficult. They encourage home time, which is good, but they haven't quite grasped Kev's urge to get it over with.
His appetite is still average, but the throat thing is back full throttle. The results showed signs of stuff, but it can be managed through 'over the counter' medicine. Tomorrow we have our standing appointment at the Knapper clinic at 10:30 in the a.m. then it's off to a weekend full of fun at the House of Care. Lets hope our accommodations include 55in, LCD TV's, soft leather couches, beer, and strippers!
Kev is actually looking pretty good at the moment, but his counts are dropping fast! He prefers to be at GMC when is counts are low because even the simplest of tasks prove difficult. They encourage home time, which is good, but they haven't quite grasped Kev's urge to get it over with.
His appetite is still average, but the throat thing is back full throttle. The results showed signs of stuff, but it can be managed through 'over the counter' medicine. Tomorrow we have our standing appointment at the Knapper clinic at 10:30 in the a.m. then it's off to a weekend full of fun at the House of Care. Lets hope our accommodations include 55in, LCD TV's, soft leather couches, beer, and strippers!
Monday, November 26, 2007
tapn' out
Ordered another Intrathecal this morning. The doctors seemed a little shocked as the patient asked for a spinal tap, but we're here to get it in then get out! Kev finally got the schedule he was looking for from Dr. Khan. We're gonna tap out tomorrow then go home. After his whites bounce back and his body recovers we're coming back for the LAST round. Hopefully he'll be back and ready to go around the 7-9 of December and with any luck we'll be able to fit in a few taps. No progress report (CAT scan or MRI) can be made until 3-4 weeks after the final treatment to be certain the chemo is all gone and won't flub the results. After said results are measured (hopefully around the second week in January) we can fit in the final four Spinal Taps. Dr. Khan said this can be done in a two week period. And thats that!
As for Kev updates... it's all starting again. The throat flared up again today along with certain bathroom activities. All expected but unwanted. His appetite is fading and he just can't seem to quench his thirst. It's nice to now the end is near, but difficult to face the path to get there. It's like knowing there is Oreo cookie ice cream for dessert, but having to eat medium rare liver and onions to get to it! AWFUL!
As for Kev updates... it's all starting again. The throat flared up again today along with certain bathroom activities. All expected but unwanted. His appetite is fading and he just can't seem to quench his thirst. It's nice to now the end is near, but difficult to face the path to get there. It's like knowing there is Oreo cookie ice cream for dessert, but having to eat medium rare liver and onions to get to it! AWFUL!
Sunday, November 25, 2007
GMC - 833
It's sunday and we're back in the Hospital, admitted yesterday. We were supposed to have the weekend, but some where, some one, some how, rescheduled! This round of chemo is short one this time, 36 hour drip (24 hour chemo - 12 hour Leucovorin). Rumor has it we may be going home tomorrow, but Kev wants to try and fit in a quick Intrathecal this week and we don't want to rush getting out. We'll be home for a few days (until Kev's whites recover) then back for the final round; 5 day session 3 times a day.
We're nearing the end of the treatment and Kev is looking forward to that. He takes each day as it comes... fighting boredom. We even talked politics this morning, now thats boring! The doctors were in for their routine visit and all is well for now. They encourage activity so we are going for a walk later... not much else to do.
His Mom is home cooking dinner, this evening we're having rigitoni. Kev knows how to work a menu, A German cooking Italian! It will be great as usual. The Food Channel! Please, we got the best right here.
Once again, all is stable. Call to see where we're at, then come see us.
-DAD
We're nearing the end of the treatment and Kev is looking forward to that. He takes each day as it comes... fighting boredom. We even talked politics this morning, now thats boring! The doctors were in for their routine visit and all is well for now. They encourage activity so we are going for a walk later... not much else to do.
His Mom is home cooking dinner, this evening we're having rigitoni. Kev knows how to work a menu, A German cooking Italian! It will be great as usual. The Food Channel! Please, we got the best right here.
Once again, all is stable. Call to see where we're at, then come see us.
-DAD
Tuesday, November 20, 2007
home sweet home
Kev is home! We woke up to Dr. Ron's smirking face and he was very impressed with Kev's tenacity to push through and how well he looked. It was a tough climbing out of the that last neutropenic hole... even the doctors knew it.
Kev was discharged, but not free... one last visit from Physical Therapy! The cute little lady, like every other female, has grown attached to Kev and she sat on the bed and chatted a bit. She is 22 with a great smile and a tumor on her pituitary gland in her brain, huh? Kev and her traded war stories and the usual just gotta fight and move on talk, but she left the room with just as much gusto as when she left, not even phased by the reminder of the tumor in her head. Then Kev begins to talk of how we need to remind the doctors of the next intrathecal treatment! Strong spirit and determined to win in the end is an understatement! All should be inspired by these hard fighting, never give up, it's just cancer individuals and hope are half as sane at that moment!!
So far so good though... meds are stocked and we're looking pretty good.
Kev was discharged, but not free... one last visit from Physical Therapy! The cute little lady, like every other female, has grown attached to Kev and she sat on the bed and chatted a bit. She is 22 with a great smile and a tumor on her pituitary gland in her brain, huh? Kev and her traded war stories and the usual just gotta fight and move on talk, but she left the room with just as much gusto as when she left, not even phased by the reminder of the tumor in her head. Then Kev begins to talk of how we need to remind the doctors of the next intrathecal treatment! Strong spirit and determined to win in the end is an understatement! All should be inspired by these hard fighting, never give up, it's just cancer individuals and hope are half as sane at that moment!!
So far so good though... meds are stocked and we're looking pretty good.
Monday, November 19, 2007
spine well spent
Another productive day as far as chemo is concerned. Kev started the day about mid-afternoon with an Intrathecal chemo treatment. He said it hurt a bit this go around, but he managed very well. A few hours later and they had another round of chemo dripping from the IV. No real movement, but at least the piles of chemo were absorbed.
No therapy of any kind today, apparently someone sticking a ginormous needle in your spine exempts you from having to deal with, "stand up", "sit down", "can you feel this", "wanna go for a walk", which is fine by Kev. There also were no results from the biopsy of the throat culture.. someone must be out on holiday!! Speaking of holiday, it looks like Kev should be home for Thanksgiving. Whether we need to return for neupogen is yet to seen, but at least will be at home for a better part of each day. Other than that it's business as usual, food network and eating ... for now!
by the by, updates have been made to the website... pictures were added.
No therapy of any kind today, apparently someone sticking a ginormous needle in your spine exempts you from having to deal with, "stand up", "sit down", "can you feel this", "wanna go for a walk", which is fine by Kev. There also were no results from the biopsy of the throat culture.. someone must be out on holiday!! Speaking of holiday, it looks like Kev should be home for Thanksgiving. Whether we need to return for neupogen is yet to seen, but at least will be at home for a better part of each day. Other than that it's business as usual, food network and eating ... for now!
by the by, updates have been made to the website... pictures were added.
Sunday, November 18, 2007
week - end
It was a pretty good weekend at the GMC. Kev took all his chemo real well and only has one more tomorrow. Depending on what is said or scheduled about the Intrathecal it looks like we should be home for the holidays ... if Kev feels up to it. In the past we rushed getting out of here because home is where the heart is, but that proved to be a mess for all parties involved. We're gonna let this ride and if we have turkey at the hospital so be it, they just don't allow beer @!#$%!
Kev is walking a lot better and his appetite is back full fledged. Just like the first cycle, he can't get enough to eat... has the munchies times 10. Last time all the food was going in, but nothing was coming out... the plumbing was clogged. This go around the pipes seem to be working better, so far.
There was a break from physical/ occupational therapy over the weekend, but tomorrow it starts again. His white count should hold stable for the next 5 - 7 days, then we're down and out again. It is very important that Kev works to get his strength before he drops for a lot of reasons.
keep'm crossed about the side effects... so far so good.
Kev is walking a lot better and his appetite is back full fledged. Just like the first cycle, he can't get enough to eat... has the munchies times 10. Last time all the food was going in, but nothing was coming out... the plumbing was clogged. This go around the pipes seem to be working better, so far.
There was a break from physical/ occupational therapy over the weekend, but tomorrow it starts again. His white count should hold stable for the next 5 - 7 days, then we're down and out again. It is very important that Kev works to get his strength before he drops for a lot of reasons.
keep'm crossed about the side effects... so far so good.
Friday, November 16, 2007
one step closer
Day two of chemo and all is well, Kevs spirits are still reasonably high. The fact he has a bit of an idea of what to expect may be making things a little easier.
It was a good day, not much action. Still no results from the throat culture though. Physical Therapy came again for a workout and Kev even ventured out himself to the kitchen with Bri. He has a little weeble to his wobble so walking is tough still. He took a little spill and landed on the floor, Bri said it was graceful, we think she tripped him (just kidding) no real harm done.
thats it .. uneventful is good, keep'm crossed for no side effects!
It was a good day, not much action. Still no results from the throat culture though. Physical Therapy came again for a workout and Kev even ventured out himself to the kitchen with Bri. He has a little weeble to his wobble so walking is tough still. He took a little spill and landed on the floor, Bri said it was graceful, we think she tripped him (just kidding) no real harm done.
thats it .. uneventful is good, keep'm crossed for no side effects!
Thursday, November 15, 2007
so it starts..
The chemo regiment/ cycle begins again. Kev started this round just as he did the very first go around. Double injection with a drip. Chemotherapy has become old hat around these parts, but Kev is not looking forward to going through the after effects again. The whole process is quite tiresome.
Today Kev was carted off somewhere to do get a culture from his throat, they found a small plaque (results to come later) and an ulcer. They have yet to determine the course of treatment just yet, they are waiting for the biopsy of the plaque. Next we walked and showered, then Physical Therapy came and had him run through some exercises, even brought some weights. Shortly there after Occupational Therapy came and he walked again... accompanied by more exercise. Bad timing equaled a lot of work for Kev. He is walking and getting around very well, gonna be tough getting knocked back down after doing so well!
These next two rounds are going to include 3 intrathecal treatments, which will make things a bit tougher, but it is better than having to make them up in the future. He already missed three that will be made up in january sometime. All in all it was good day... should be good through the weekend before the counts start to drop again, keep'm crossed the side effects won't be that bad.
Today Kev was carted off somewhere to do get a culture from his throat, they found a small plaque (results to come later) and an ulcer. They have yet to determine the course of treatment just yet, they are waiting for the biopsy of the plaque. Next we walked and showered, then Physical Therapy came and had him run through some exercises, even brought some weights. Shortly there after Occupational Therapy came and he walked again... accompanied by more exercise. Bad timing equaled a lot of work for Kev. He is walking and getting around very well, gonna be tough getting knocked back down after doing so well!
These next two rounds are going to include 3 intrathecal treatments, which will make things a bit tougher, but it is better than having to make them up in the future. He already missed three that will be made up in january sometime. All in all it was good day... should be good through the weekend before the counts start to drop again, keep'm crossed the side effects won't be that bad.
Wednesday, November 14, 2007
new plan
Today we woke up and waited for the doctors as usual, she was running a bit behind. Little did we know the entire Hematology staff was meeting about Kev. A decision was made. Instead of going home for a week or so, the Doctors felt it best to get the chemo, that was originally scheduled for after Thanksgiving, started A.S.A.P. This decision was not based on any scientific research or test results. It was simply a case of, "you recovered well, let's keep going."
Believe it or not, this made Kev really happy. Why put of till tomorrow what you can treat today. Yes a break home would have been nice, but knowing the means to kill the Cancer are in effect is nicer. This means Thanksgiving at the GMC and we'll certainly be thankful Kev is being treated.
Among other things Kev is having some throat trouble.. hurts when he swallows. Each and every doctor, nurse, patient, and passer by all asks the same question, "does it hurt or does it feel like things are getting stuck?" Kev always answers, "it hurts" reinforcing what he said. Kev has decided to tell all that 'it feels like things are getting stuck' expecting their response to be, "so it hurts." Regardless all the medications to sooth this are not working (even the one with MAGIC in the name, crazy) so they are going to take a culture tomorrow morning. This is the one test Kev is hoping they actually find something so it can be treated. There are some speculations that it may be fungus or a virus of some type. Either way it can be treated, which is good.
Believe it or not, this made Kev really happy. Why put of till tomorrow what you can treat today. Yes a break home would have been nice, but knowing the means to kill the Cancer are in effect is nicer. This means Thanksgiving at the GMC and we'll certainly be thankful Kev is being treated.
Among other things Kev is having some throat trouble.. hurts when he swallows. Each and every doctor, nurse, patient, and passer by all asks the same question, "does it hurt or does it feel like things are getting stuck?" Kev always answers, "it hurts" reinforcing what he said. Kev has decided to tell all that 'it feels like things are getting stuck' expecting their response to be, "so it hurts." Regardless all the medications to sooth this are not working (even the one with MAGIC in the name, crazy) so they are going to take a culture tomorrow morning. This is the one test Kev is hoping they actually find something so it can be treated. There are some speculations that it may be fungus or a virus of some type. Either way it can be treated, which is good.
Tuesday, November 13, 2007
ground hog days
Woke up, again. Dr. McCoy came in and discussed Kev's appetite, again. She mentioned we will have to stay in the hospital a couple more days, AGAIN!
They are very good and very efficient around here and that is prolonging our visit. The stronger Kev gets himself (inside and out) the better his body will handle the intense chemotherapy to come. He was on the Nutrition drip, which basically tricked his brain into thinking he was full and nourished without eating. That was good then, NOW he needs to eat, but has no appetite #$%^&! It will come, today Ma brought Arby's, a cheese steak, and pizza. It was all gone, eaten by the chubby little brother #$&%!
Occupational and physical therapy have been rotating days giving Kev a pretty good little work out to strengthen his legs. He is walking a lot better and should be able able to get around real well at home. The Doctors are actually encouraging him to get out and do things while he is at home. After almost two weeks in the same room, just getting out will feel like "getting out and doing things" for Kev.
They are very good and very efficient around here and that is prolonging our visit. The stronger Kev gets himself (inside and out) the better his body will handle the intense chemotherapy to come. He was on the Nutrition drip, which basically tricked his brain into thinking he was full and nourished without eating. That was good then, NOW he needs to eat, but has no appetite #$%^&! It will come, today Ma brought Arby's, a cheese steak, and pizza. It was all gone, eaten by the chubby little brother #$&%!
Occupational and physical therapy have been rotating days giving Kev a pretty good little work out to strengthen his legs. He is walking a lot better and should be able able to get around real well at home. The Doctors are actually encouraging him to get out and do things while he is at home. After almost two weeks in the same room, just getting out will feel like "getting out and doing things" for Kev.
Monday, November 12, 2007
huh...
Another day at the GMC and Kev looks today better than he has in weeks. Just like when he looked terrible and everyone wanted to tell him, today was a day of well received, "you look great." Kev walked twice, once in the morning and another early afternoon with the Physical Therapist. He is walking very well, the days to come should only be better.
An awkward moment no one really expected, not even the doctors, was the results of Fridays CAT scan. Dr. Ron came in (with his usual wind in face, have to pee expression) and said Kev has a blood clot on his lung... huh! This came as a bit of a shot since with chemo his counts have been so low, especially his platelets. They think it has been around for a bit. The clot is so small it took some time to verify and be certain it was a clot, but it still needs to treated. SO, instead of Kev just hanging about at home doing nothing, but popping pills, he will now have to partake in daily blood thinning shots. There is an anti-coagulate that he could take, but they say it is basically rat poison? This is a bit risky for Kev at the moment. No one is really alarmed about the whole ordeal... more dumbfounded that it actually happened.
He did eat some today, but is bothered by a throat soreness. He is taking Carafate and Magic Swizzle for now. Hopefully this will get him ready to start eating people food and not liquid from a bag. Some bad news today, but the road to normalcy gets shorter with each day!
An awkward moment no one really expected, not even the doctors, was the results of Fridays CAT scan. Dr. Ron came in (with his usual wind in face, have to pee expression) and said Kev has a blood clot on his lung... huh! This came as a bit of a shot since with chemo his counts have been so low, especially his platelets. They think it has been around for a bit. The clot is so small it took some time to verify and be certain it was a clot, but it still needs to treated. SO, instead of Kev just hanging about at home doing nothing, but popping pills, he will now have to partake in daily blood thinning shots. There is an anti-coagulate that he could take, but they say it is basically rat poison? This is a bit risky for Kev at the moment. No one is really alarmed about the whole ordeal... more dumbfounded that it actually happened.
He did eat some today, but is bothered by a throat soreness. He is taking Carafate and Magic Swizzle for now. Hopefully this will get him ready to start eating people food and not liquid from a bag. Some bad news today, but the road to normalcy gets shorter with each day!
Sunday, November 11, 2007
stealing home...
There was some sleep last night, about 4 hours. Not bad considering the past few days. Tonight the nurses went back to the original recipe that worked well in the past, so hopefully it still works. Kev had his last bag of the nutritious nutrition and now needs to concentrate on getting an appetite and eating real food. This is currently the only thing keeping here in the hospital.
His counts today are practically normal. He and Dad went on a nice long walk about the hallways and later we strolled outside to get some fresh air. Dr. Khan said things are progressing well, but gave Kev some "what to expect" information for next time. He was low, down and out this round, but Dr. Khan said Round three should find you lower, more down and way out. He said this about Round 4 as well. In addition, he gave a forecast of "chemo brain" a condition in which the mind is in a fog — unable to concentrate and remember details about everyday things. More like taking a HUGE bong hit that lasts a few months, but there is no giggling.
Yes Kev is doing well, but it is defenitely taking a toll on him. He has been quite lethargic with very little motivation. He still does not complain or feel the need pitty himself, which is cool, but the idea of coming back and knowing it will be worse stinks. He has been fighting and now knows he needs to fight a little harder. Two more tough rounds before he can ring the bell!!
His counts today are practically normal. He and Dad went on a nice long walk about the hallways and later we strolled outside to get some fresh air. Dr. Khan said things are progressing well, but gave Kev some "what to expect" information for next time. He was low, down and out this round, but Dr. Khan said Round three should find you lower, more down and way out. He said this about Round 4 as well. In addition, he gave a forecast of "chemo brain" a condition in which the mind is in a fog — unable to concentrate and remember details about everyday things. More like taking a HUGE bong hit that lasts a few months, but there is no giggling.
Yes Kev is doing well, but it is defenitely taking a toll on him. He has been quite lethargic with very little motivation. He still does not complain or feel the need pitty himself, which is cool, but the idea of coming back and knowing it will be worse stinks. He has been fighting and now knows he needs to fight a little harder. Two more tough rounds before he can ring the bell!!
Saturday, November 10, 2007
I'll start by stating what Dr. Khan told us this morning. "The turn around has begun." Kev's white cells are.... way up from the day before. They went from .54 to nearly normal, which is around 7. His blood pressure is great and sugar is good, all vital signsare normal. How great is that! The plan is no more chemo until after Thanksgiving. Kev will be able to enjoy Turkey day. Then round three starts with a break until after Christmas. This schedule was designed bu the Doctors so Kev would be well enough to enjoy the Holidays. They are unbelievable!
I must say Kev is fighting this harder than a Pitbull at Michael Vick's house. Once he gets stronger and starts eating more, he can go home. Perhaps ealy next week, but we're not going to rush anything.
All together, let's cross our fingers. Another day of good news... we can deal with that!
Thanks,
Dad
I must say Kev is fighting this harder than a Pitbull at Michael Vick's house. Once he gets stronger and starts eating more, he can go home. Perhaps ealy next week, but we're not going to rush anything.
All together, let's cross our fingers. Another day of good news... we can deal with that!
Thanks,
Dad
Thursday, November 8, 2007
updates
Kev is still real down and out! He is now getting extremely restless, which is a terrible when combined with weakness. He lays in bed like a turtle on his back just waiting to fall asleep. Soon, real soon the counts should start climbing. Ma bagged work again to apply some TLC to the list of drugs. Dr. Khan is a bit surprised he is as low as he is at the moment, but it's not uncommon due to the amount and strength of chemo he took last week. To help speed things up they gave him some Magnesium (the fourth most abundant mineral in the body. Only 1% of magnesium is found in blood, but the body works very hard to keep blood levels of magnesium constant. It helps maintain normal muscle and nerve function, keeps heart rhythm steady, and supports a healthy immune system),Potassium (an element (and an electrolyte) that's essential for the body's growth and maintenance. It's necessary to keep a normal water balance between the cells and body fluids. A potassium deficiency is due to increased urinary loss.) and some platelets.
He has been too weak to eat so a nutritionist stop by and recommended some nutrition.. who would have thought. So before bed they strung up a bag of nutrition that looked like watered-down creamy mashed potatoes and Kev feasted. Tomorrow we will attempt to move Kev into a chair for a bit to get his equilibrium thinking more vertical. For the love of pete, keep'm crossed for the whites to rise up!!
He has been too weak to eat so a nutritionist stop by and recommended some nutrition.. who would have thought. So before bed they strung up a bag of nutrition that looked like watered-down creamy mashed potatoes and Kev feasted. Tomorrow we will attempt to move Kev into a chair for a bit to get his equilibrium thinking more vertical. For the love of pete, keep'm crossed for the whites to rise up!!
Wednesday, November 7, 2007
still way down
Kev is still very very weak and tired. He has been in the bed now for 3 days straight. He hasn't had an opportunity to walk or even sit up for lengthy period of time. His fever last night caused some concern from Dr. Khan, who expressed it is too risky to send Kev home any time soon. His fever is not necessarily a bad thing...
consider:
currently Kev is neutropenic, meaning his white blood cells (among other things) are very low, we all know that white blood cells attack bacteria and other foreign agents in the body, as well as any infection. Without these whites, the only other line of defense the body has is to increase the temperature. In Kev's case fevers are common because the tumors he has remaining, be it large or small, are foreigners to the body. Doctors normally let it ride since the fever isn't accompanied by any pain and what not.
Tomorrow should be the beginning of an upswing in whites. Once he starts feeling better he will be back on the regimented walking and sitting. He was a bit battled today, not liking the fact he is bed ridden and wanting the legs to get back to normal. Even the best fighters take a few cracks to the chin and even get knocked down, but I assure you, Kev will be back up and ready the fight real soon!
consider:
currently Kev is neutropenic, meaning his white blood cells (among other things) are very low, we all know that white blood cells attack bacteria and other foreign agents in the body, as well as any infection. Without these whites, the only other line of defense the body has is to increase the temperature. In Kev's case fevers are common because the tumors he has remaining, be it large or small, are foreigners to the body. Doctors normally let it ride since the fever isn't accompanied by any pain and what not.
Tomorrow should be the beginning of an upswing in whites. Once he starts feeling better he will be back on the regimented walking and sitting. He was a bit battled today, not liking the fact he is bed ridden and wanting the legs to get back to normal. Even the best fighters take a few cracks to the chin and even get knocked down, but I assure you, Kev will be back up and ready the fight real soon!
Tuesday, November 6, 2007
Neutropenia
Kev was at rock bottom today with the white count and so was his energy level. He woke up groggy with no appetite. Kev's one and only Mamma again saved the day by blowing off work (jobs are highly overrated) to keep him going. She performed her now famous massage and layered the blankets on. Kev had pretty extensive shivers for a good half hour, but no fever? All was well after a bit.
He was able to finally chow down three cups of crushed ice, some chicken broth, and although he rarely requests food anymore the aroma gets him. He had some of Ma's cheesesteak and a bit of a meatball sub. Russo was here too, but he ate his too fast to share.
Kev has been very weak, but the forecast for weeks end should be good. He did spike a small fever before bed, but nothing to brag about. Tomorrow, with luck, we walk the halls. keep'm crossed!
He was able to finally chow down three cups of crushed ice, some chicken broth, and although he rarely requests food anymore the aroma gets him. He had some of Ma's cheesesteak and a bit of a meatball sub. Russo was here too, but he ate his too fast to share.
Kev has been very weak, but the forecast for weeks end should be good. He did spike a small fever before bed, but nothing to brag about. Tomorrow, with luck, we walk the halls. keep'm crossed!
Monday, November 5, 2007
deja vu
Today was supposed to be a good day! The first of a long 10 day stint home with family, BUT we woke up, made Kev scrambled eggs and toast and headed off to GMC for the neupogen shot... it was all down hill from there. From either the car ride or my delightful scrambled eggs (which I doubt) Kev became very ill for about 4 hours. A lot of (not so bright) people felt it would help the situation by looking at Kev (with a just smelled fart look) and tell him how awful he looked. Now Kev was reassured that he feels and looks terrible! It was a good opportunity to use the line, "he has cancer, whats your excuse" but we decided it was better to make friends than enemies.
Kev is also zeroing in on neutropenia, we left on Saturday with a count of 3500 and they measured today a count of 590. I'm not a doctor, but I know math... thats a big drop in a short amount of time. He should be neutropenic tomorrow and wednesday, then back up by Thursday or Friday.
Kev fought really, really, really hard today!! A normal person may have broken down or have wanted to give up, but Kev merely muttered an occasional, "this sucks" and continued to look ahead. He has now completed 50% of his treatment, but continues to give 100% in effort. Once he reaches his normal 110%, he'll be well on his way to Bora Bora, or (dad said it best) some other place we never heard of.
Kev is also zeroing in on neutropenia, we left on Saturday with a count of 3500 and they measured today a count of 590. I'm not a doctor, but I know math... thats a big drop in a short amount of time. He should be neutropenic tomorrow and wednesday, then back up by Thursday or Friday.
Kev fought really, really, really hard today!! A normal person may have broken down or have wanted to give up, but Kev merely muttered an occasional, "this sucks" and continued to look ahead. He has now completed 50% of his treatment, but continues to give 100% in effort. Once he reaches his normal 110%, he'll be well on his way to Bora Bora, or (dad said it best) some other place we never heard of.
Sunday, November 4, 2007
down and out!
Kev is home! He came home yesterday, just barely. Dr. Larry left it up to Kev if he was ready to go home. He woke up a little nauseous, so they poked him with an IV Adovan, which just knocks him out. His vitals are good, but there is a certain element of the blood that is low, along with his protein.
Fluids this trip home are very important! All the Chemo he has consumed is really taking a toll on his kidneys and the only way to negate damage is to flush the buggers with a whole lot of fluid. Along with the prescribed fluid a lot of meds came too, old ones and new ones. These Docs really have it all covered... If Kev mentions he has a pain in his little left toe, they have something for that. We, as a family, have become quite the pharmacists ourselves.
Kev woke up today still feeling nauseous, and everything he tried to put in just when down then came back out! We gave a quick call to the doctors who prescribed this with that and some of those. After a little nap and some hard work from Kev, Mom, and Dad, he was feeling pretty O.K. by days end. Tomorrow is back to GMC for a shot and some blood work, then back home. Should be a good day.
Fluids this trip home are very important! All the Chemo he has consumed is really taking a toll on his kidneys and the only way to negate damage is to flush the buggers with a whole lot of fluid. Along with the prescribed fluid a lot of meds came too, old ones and new ones. These Docs really have it all covered... If Kev mentions he has a pain in his little left toe, they have something for that. We, as a family, have become quite the pharmacists ourselves.
Kev woke up today still feeling nauseous, and everything he tried to put in just when down then came back out! We gave a quick call to the doctors who prescribed this with that and some of those. After a little nap and some hard work from Kev, Mom, and Dad, he was feeling pretty O.K. by days end. Tomorrow is back to GMC for a shot and some blood work, then back home. Should be a good day.
Saturday, November 3, 2007
2nd edition
Hello again from GMC, Dad again with my second installment at blogging, BJ's getting way too much air time. I spent the night with Kevin last night. It was good since work has kept me more occupied than I would prefer. I was able to help him through the night. Not much sleep, but that is unimportant. Dr. Larry was in and said Kev is gonna go home later today. He also said things look good. He's gonna get a pint of blood for the raod (his word's. Just a little perk up. We have to work on his protein level while he is home, gonna make a couple protein shakes. We talked a bit this morning and Kev says he is confident he is getting the best of care here at GMC. He did mention it was quite boring, but the end result will be well worth the wait. He will be home all next week so PLEASE fill free to visit, the door is aways open.
Keep your comments coming, we all enjoy reading them... until next time'
Have a great day,
Dad
Keep your comments coming, we all enjoy reading them... until next time'
Have a great day,
Dad
Friday, November 2, 2007
just in spine!
Intrathecal today... everything went very well!!! Kev left the room this morning about 8:35 in the a.m. and returned 10 minutes before 10. They numbed the area of the skin where they were going to poke and that was it. He laid on his stomach (similar to a surfer catching a waive, but without the arm paddle) and just waited as they removed spinal fluid and replaced it with Chemo. Kev said it wasn't really bad at all and there was little discomfort afterwards. He was up walking around and peeing as usual.
There was much anxiety among the family about this treatment, but Kev made it easier on everybody. For someone who has been lying in bed all week getting pumped with chemo knowing people were about to stab his spine with a needle and he just high fives and says, "see you when I get back"... thats it. If I, or anyone, ever approaches a situation like this half as strong as Kev, they we'll be just fine.
Tonite Dad is taking overnite duty at the Hospital. He's used to bunking from sleeping in his truck (he's a truckdriver for those of you who don't know, not a hillbilly) so they should have a pretty good nite.
keep'm crossed, Kev may be coming home tomorrow.
There was much anxiety among the family about this treatment, but Kev made it easier on everybody. For someone who has been lying in bed all week getting pumped with chemo knowing people were about to stab his spine with a needle and he just high fives and says, "see you when I get back"... thats it. If I, or anyone, ever approaches a situation like this half as strong as Kev, they we'll be just fine.
Tonite Dad is taking overnite duty at the Hospital. He's used to bunking from sleeping in his truck (he's a truckdriver for those of you who don't know, not a hillbilly) so they should have a pretty good nite.
keep'm crossed, Kev may be coming home tomorrow.
Thursday, November 1, 2007
cruise control
Good day all around. Kev woke up with lots of color and some energy. Nothing changed from the doctor standpoint, just a little heads up to drink more fluids, especially when he is home (which may happen sunday-ish)
We strolled about the halls twice and spent most of the day awake watching the food channel. Ma saved the day again by bringing food.. more soup and some mac-n-cheese and performing her daily massage pampering, Bri tried to help, but she is apparently not that good at it. It was quite an uneventful day, which is very good news. No fever, no nausea, or lethargy, just a small headache that eventually went away.
There were lots of visitors today, the regulars mostly and some old friends from the bank days. Kev always perks up when people come so please don't be shy. (ice cream and pudding on me) We also took the time to watch Liar Liar in VHS form which was good for a few laughs, but Kev had taken his pre-chemo drugs and became a bit groggy. He was probably awaken from time to time via the laughter, but he's used to that since we mostly sit around and make fun of each other (and him) most of the time.
Tomorrow is Kev's first Intrathecal treatment, follow the link to learn more...
click here on this text.
We strolled about the halls twice and spent most of the day awake watching the food channel. Ma saved the day again by bringing food.. more soup and some mac-n-cheese and performing her daily massage pampering, Bri tried to help, but she is apparently not that good at it. It was quite an uneventful day, which is very good news. No fever, no nausea, or lethargy, just a small headache that eventually went away.
There were lots of visitors today, the regulars mostly and some old friends from the bank days. Kev always perks up when people come so please don't be shy. (ice cream and pudding on me) We also took the time to watch Liar Liar in VHS form which was good for a few laughs, but Kev had taken his pre-chemo drugs and became a bit groggy. He was probably awaken from time to time via the laughter, but he's used to that since we mostly sit around and make fun of each other (and him) most of the time.
Tomorrow is Kev's first Intrathecal treatment, follow the link to learn more...
click here on this text.
Wednesday, October 31, 2007
it's quicker that way..
Day 3 of 5 complete! More good news today from the Doctors... Kev had a lump under his right arm when he first arrived in these United States, that lump no longer exists. The Doc (whom they refer to as 'Godfather' on the floor) said this is a very good sign,then left real quick like he smelled burning toast... always the same exit.
He received no blood today, maybe tomorrow. There was a brief stint of overwhelming nausea, which lead to on uncontrolled abdominal workout a.k.a. vomiting. Kev thinks it was more from the amount of pills he is taking combined with the throat irritation, BUT the nurses did swoop to the rescue with some anti-nausea and an adovan kicker. The adovan was slipped through the IV because it's quicker that way and was followed by some oxycodone (pain killer) to alleviate the discomfort stemming from the throat and back. These medicines combined must be what they use in horse tranquilizer, because Kev was OUT!
It may sound like Kev sleeps a lot, but he actually only catches few hour naps. This particular chemo really breaks down the tumors and when the tumors breakdown they release large amounts of uric acid into the body, which can effect the kidney's. To counteract this, Kev is taking allopurinol and a lot of saline, which makes him pee... ALOT! He can usually sleep a good hour and half or so before wizzing. This is O.K. during the day, but at night after two ambiem he sways about like he's on about, but he has real good aim!
He received no blood today, maybe tomorrow. There was a brief stint of overwhelming nausea, which lead to on uncontrolled abdominal workout a.k.a. vomiting. Kev thinks it was more from the amount of pills he is taking combined with the throat irritation, BUT the nurses did swoop to the rescue with some anti-nausea and an adovan kicker. The adovan was slipped through the IV because it's quicker that way and was followed by some oxycodone (pain killer) to alleviate the discomfort stemming from the throat and back. These medicines combined must be what they use in horse tranquilizer, because Kev was OUT!
It may sound like Kev sleeps a lot, but he actually only catches few hour naps. This particular chemo really breaks down the tumors and when the tumors breakdown they release large amounts of uric acid into the body, which can effect the kidney's. To counteract this, Kev is taking allopurinol and a lot of saline, which makes him pee... ALOT! He can usually sleep a good hour and half or so before wizzing. This is O.K. during the day, but at night after two ambiem he sways about like he's on about, but he has real good aim!
Tuesday, October 30, 2007
no bones about it?
After the weekend home we started round 3 with a visit to the Knapper Clinic to see Dr. Khan. (see treatment tab on site) He gave Kev some good news. We are 25% done with the treatment and there is NO signs of the cancer in his marrow. We are uncertain of the communication malfunction, but Dr. Khan, Dr. Khan (like the song) is the big shot and he said no. He was also pleased with how well Kev's immune system bounced back after his white count was so low. More good news.
After the clinic we returned to the 8th floor (rm 838), which is great for us because the kitchen with all the ice cream, pudding, and drink is really close, but not so cool for Kev since the lady across the hall has a bit of hearing problem and keeps her TV loud enough to be heard by ears of corn!
Kev went for two walks today around the hall and has been eating quite a bit too. Ma made some soup. His white bloods are up, but the chemo now causes his reds to be down, so he's a bit lethargic. He received a pinto-o-blood today that perked him up and made for a pretty good day. We discovered that he and I are the same blood type, but when I mentioned this he said he didn't want any of my blood... he already has enough problems!
After the clinic we returned to the 8th floor (rm 838), which is great for us because the kitchen with all the ice cream, pudding, and drink is really close, but not so cool for Kev since the lady across the hall has a bit of hearing problem and keeps her TV loud enough to be heard by ears of corn!
Kev went for two walks today around the hall and has been eating quite a bit too. Ma made some soup. His white bloods are up, but the chemo now causes his reds to be down, so he's a bit lethargic. He received a pinto-o-blood today that perked him up and made for a pretty good day. We discovered that he and I are the same blood type, but when I mentioned this he said he didn't want any of my blood... he already has enough problems!
Monday, October 29, 2007
round 3
Hello, I'm the Mom, but my kids like to call me "momma", I'm the drill sergeant of the family (my kids, BJ's friends, and maybe even my husband would agree!) That's the German in me so "deal with it." Kevin has very weak legs, so my biggest job is massage his legs and feet... he enjoys this entirely too much. It makes me wonder sometimes, especially when his dad takes one leg and I'm on the other and he just smiles. Thats O.K. though, just to see him smile is good enough for me (I am keeping tabs for when I'm 80 and he has to return the favor LOL)
I'd like to thank everybody who has made my son smile and continue to do so. It's nice to see (and hear) he has such good people in his life. Visitors are always welcome!
It's a hard road to travel, but we WILL make it!
Please continue to keep Kevin in your thoughts and prayers.
Thank you,
Momma
I'd like to thank everybody who has made my son smile and continue to do so. It's nice to see (and hear) he has such good people in his life. Visitors are always welcome!
It's a hard road to travel, but we WILL make it!
Please continue to keep Kevin in your thoughts and prayers.
Thank you,
Momma
Sunday, October 28, 2007
good to "bee" home..
Kev had a pretty darn good weekend. He slowly, but surely got his color back and today he was a wonderful shade of human! Saturday he was still a little grogy from all the medication, but we did make our scheduled trip to Connygham. It was raining, but he got to get out and go some where. Dad succesfully installed the ceiling fan and top of the line $27.00 DVD player.
Lots of visitors were in and out all weekend which Kev enjoys a lot... his eyes may be closed and the occasional poke is needed to see if he is there, but he does nod and smirk from time to time. Today Kev felt well enough to get his normal restless self and wanted to do something. We dressed him up and took a stroll outside, it was a bit chilly so it didn't last long.
He gained a bit of an appetite and ate some real food. Ma made 'Pigs in the Blanket' for 7 and a half people. (the half is for our friend Anthony Russo who sure likes food and the game monopoly, but is bad at twister) Kev sat, ate, and laughed then watched a movie before bed. Today was leftover piggies and fish... not bad!
On a side note: Kev is allergic to bee's, he wears a band in the hospital that displays this fact and there is an ongoing joke with doctors and nurses when they ask if he is allergic to anything, "you don't have any bees do you?" we giggle and move on. Being 'Flu' season, our concerns are that someone would catch the bug and get sick.. instead Dad spent saturday in October chasing a bug. As we sat in the living room chatting a "YELLOW JACKET" flies into the cathedral ceiling living room looking for trouble. Now picture a 6'2" 199 lbs dad swatting atop a step ladder at a bee he cannot reach!! Crazy who would have thought!! We got the little bugger and his friends too.. pictures to follow in the near future.
Lots of visitors were in and out all weekend which Kev enjoys a lot... his eyes may be closed and the occasional poke is needed to see if he is there, but he does nod and smirk from time to time. Today Kev felt well enough to get his normal restless self and wanted to do something. We dressed him up and took a stroll outside, it was a bit chilly so it didn't last long.
He gained a bit of an appetite and ate some real food. Ma made 'Pigs in the Blanket' for 7 and a half people. (the half is for our friend Anthony Russo who sure likes food and the game monopoly, but is bad at twister) Kev sat, ate, and laughed then watched a movie before bed. Today was leftover piggies and fish... not bad!
On a side note: Kev is allergic to bee's, he wears a band in the hospital that displays this fact and there is an ongoing joke with doctors and nurses when they ask if he is allergic to anything, "you don't have any bees do you?" we giggle and move on. Being 'Flu' season, our concerns are that someone would catch the bug and get sick.. instead Dad spent saturday in October chasing a bug. As we sat in the living room chatting a "YELLOW JACKET" flies into the cathedral ceiling living room looking for trouble. Now picture a 6'2" 199 lbs dad swatting atop a step ladder at a bee he cannot reach!! Crazy who would have thought!! We got the little bugger and his friends too.. pictures to follow in the near future.
Friday, October 26, 2007
second door on the right...
Kev is home! The temperature has kept itself in check so far.. reached 100 once or twice, but nothing to brag about. He had breakfast today, and apparently dad is really good at making protein shakes for lunch. His medication list is not as long as the last trip home, but the kitchen counter still looks like a Frat house full of ugly boys who need help "meeting" girls.
His strength is still a bit low, but he is walking a lot better than when we first got our hands on him. He is also really pale, not like that kid in the movie 'Powder'.. it's more like the hungover pale you get after drinking any tequila. Tomorrow is a big day we're going to Cunnyngham in the morning, then dad's gonna hang a ceiling fan in Kev's room. Kev's room is the second door on the right down the hall and is where he spends most of his time. For precautionary measures we put a doorbell in his room so he get any one's attention at anytime, should he need some assistance.
The boo and friends plan on hanging out tomorrow night to entertain him, which is good since Kev really only seems comfortable when girls are around him.
His strength is still a bit low, but he is walking a lot better than when we first got our hands on him. He is also really pale, not like that kid in the movie 'Powder'.. it's more like the hungover pale you get after drinking any tequila. Tomorrow is a big day we're going to Cunnyngham in the morning, then dad's gonna hang a ceiling fan in Kev's room. Kev's room is the second door on the right down the hall and is where he spends most of his time. For precautionary measures we put a doorbell in his room so he get any one's attention at anytime, should he need some assistance.
The boo and friends plan on hanging out tomorrow night to entertain him, which is good since Kev really only seems comfortable when girls are around him.
Thursday, October 25, 2007
coming home
Hello everybody! It's me, Mark, the Dad. As I sat today at Kevin's bedside, eating a doughnut, that I dribbled down the front of my black shirt, I thought I would try my hand at blogging, something I know nothing about.
I arrived at the hospital at 9:07 a.m. After circling the parking lot 17 times, I finally found a spot. I thought about putting a number on Kev's Jeep, slapping a Geisinger decal on the hood, and becoming a Nascar driver for the day!
When I got to Kev's room he looked better today than yesterday, although still very tired. His team of doctors arrived and we received great news! His vitals were good and his white blood cell count was up to nearly normal, which means he will probably came home. Speaking of doctors, his mom, his brother and myself could not be more satisfied that Kev is getting the absolute best care possible. The nursing staff is the best...none better. You don't know how good that makes us feel.
I just wanted to let you all know how grateful we are for your thoughts, prayers, cards, e-mails, texts, and comments, and also how personally lucky I am for having been blessed with a great family. A wonderful, caring wife and 2 great sons who
someday will be paying all of our bills while we lounge on the beach in Hawaii, sipping drinks with those little umbrella's in them.
We are all looking forward to the day Kevin is once again jet-setting around the world in places I've never heard of.
Once again, Thank you each and every one for your concern and support.
Sincerely,
Mark
I arrived at the hospital at 9:07 a.m. After circling the parking lot 17 times, I finally found a spot. I thought about putting a number on Kev's Jeep, slapping a Geisinger decal on the hood, and becoming a Nascar driver for the day!
When I got to Kev's room he looked better today than yesterday, although still very tired. His team of doctors arrived and we received great news! His vitals were good and his white blood cell count was up to nearly normal, which means he will probably came home. Speaking of doctors, his mom, his brother and myself could not be more satisfied that Kev is getting the absolute best care possible. The nursing staff is the best...none better. You don't know how good that makes us feel.
I just wanted to let you all know how grateful we are for your thoughts, prayers, cards, e-mails, texts, and comments, and also how personally lucky I am for having been blessed with a great family. A wonderful, caring wife and 2 great sons who
someday will be paying all of our bills while we lounge on the beach in Hawaii, sipping drinks with those little umbrella's in them.
We are all looking forward to the day Kevin is once again jet-setting around the world in places I've never heard of.
Once again, Thank you each and every one for your concern and support.
Sincerely,
Mark
Wednesday, October 24, 2007
Hat Trick
Kev got news today that his white count was up and the doctor said they are gonna keep him another 24 hours to be certain, then maybe he can come home. That was around 10:17 in the a.m. (eastern standard time) Kev felt pretty good in the morning as he got out of bed and sat, in what has become known as the worst chair in the world. Picture a 1972 two tone green ford pinto with a brown hood, driven by an elderly couple with the blinker on and they are noticeably arguing because he has gas... you are stuck behind them and are very late that scenario is this chair! But after that, Kev was quite unproductive.
He still has no appetite and I thinks it's because he is filled on pills... he doesn't even ask what they are anymore. About 6pm, Kev pulled the Hat Trick and got himself another fever. The doctor's pulled blood when last two occurred and even did a chest xRay, but found nothing out of the ordinary. With this in mind, it was determined the fevers could be attributed to the cancer coming back a bit. (Normal and Expected)
After that, all was well until Heather showed up with her pumpkin cookies, shortly there after, kev became pretty ill. I would say he got sick as a dog, but I never heard a dog make noises like that. It was more like the sound an elephant would make if he had a popcorn kernel stuck to the roof of his mouth as he moaned because he had to sneeze, burp, and fart at the same time. It was a rough half hour or so, but thanks to Nurse Ann, he got his color back and was back in ready to rest up for his trip home... again keep'm crossed.
He still has no appetite and I thinks it's because he is filled on pills... he doesn't even ask what they are anymore. About 6pm, Kev pulled the Hat Trick and got himself another fever. The doctor's pulled blood when last two occurred and even did a chest xRay, but found nothing out of the ordinary. With this in mind, it was determined the fevers could be attributed to the cancer coming back a bit. (Normal and Expected)
After that, all was well until Heather showed up with her pumpkin cookies, shortly there after, kev became pretty ill. I would say he got sick as a dog, but I never heard a dog make noises like that. It was more like the sound an elephant would make if he had a popcorn kernel stuck to the roof of his mouth as he moaned because he had to sneeze, burp, and fart at the same time. It was a rough half hour or so, but thanks to Nurse Ann, he got his color back and was back in ready to rest up for his trip home... again keep'm crossed.
Tuesday, October 23, 2007
beat the heat
Kev can leave the Hospital once his white blood cells are up... today the doctors told him his count was lower today than yesterday. This isn't out of the ordinary and PA Ron Grimm (not part of the famous 'the brothers grimm')said he should be up and ready in a day or two. Kev may be spending the weekend at home. Depending on his counts/ levels, his treatment for next week may be postponed, but that would be a good thing so he could have an extra day at home with Ma's cooking and he needs the food. The hospital food they serve, would make a Nun feel like she is being punished. They tried to serve Kev something that resembled chicken that got in a fight with some half cooked scrambled eggs. It was so bad Dad had to spit it in the garbage!!! (Dad does NOT waste food!!)
Somewhere after the dinner debacle, Kev spiked another fever, 102.5 which is the average high temperature in Tucson, AZ in the month of July... crazy! Like the last spike, some tylenol and a quick nap with Ma... gone.
There was a terrific highlight to Kev's day, when he received a book from his girls in Orlando (sharon and lauren) entitled, "everybody poops". It was great read that compliments the little guy that poops that Pat and Lou brought the day before. (video to come at a later date).
by the by, If Kev has not returned any calls or emails please do not be alarmed. He is so weak at the moment, just taking a drink is a chore. So just keep your fingers crossed that his counts are up and he beats the heat so my brother can come home for the weekend.
Somewhere after the dinner debacle, Kev spiked another fever, 102.5 which is the average high temperature in Tucson, AZ in the month of July... crazy! Like the last spike, some tylenol and a quick nap with Ma... gone.
There was a terrific highlight to Kev's day, when he received a book from his girls in Orlando (sharon and lauren) entitled, "everybody poops". It was great read that compliments the little guy that poops that Pat and Lou brought the day before. (video to come at a later date).
by the by, If Kev has not returned any calls or emails please do not be alarmed. He is so weak at the moment, just taking a drink is a chore. So just keep your fingers crossed that his counts are up and he beats the heat so my brother can come home for the weekend.
Monday, October 22, 2007
new buzz...
Kev is still in the Hospital with no signs of leaving. His spiked temperature scare has kept him under the watchful of Larry ( the physicians assistant who will be halloweening as a scarecrow this year ). Kev's white blood cell count is pretty low still, rendering him very weak and tired. Dad is on duty this week and drug kev for a walk up and down 'the hall'. ('the hall' to Kev is the equivialant of a non-neutropenic climbing a mountain on one leg). Kev also made the efforts to shower for the first time in quite a while and came out of the bathroom looking like a stray dog in tijuana. This made Mom a bit uneasy when she saw her son in bed with a hairdo that could have been done by a wild cougar. Of course talk of buzzing it came out and within hours Nurses entered ready to shave. There was brief showing of a mowhawk ( see photos on site ) and some laughter, mostly from the onlookers!
The good news is Kev looks pretty darn good with a shaved head and his bed no longer looks as if there are stray cats sleeping with him at night. He also strikingly resembles a mixture of our cousin Keith, our Uncle George, and Dad. (all good looking gentlemen )
p.s. there was a nurse today who thought Dad was Kev's brother ... for those who don't know Dad... she was joking!!
The good news is Kev looks pretty darn good with a shaved head and his bed no longer looks as if there are stray cats sleeping with him at night. He also strikingly resembles a mixture of our cousin Keith, our Uncle George, and Dad. (all good looking gentlemen )
p.s. there was a nurse today who thought Dad was Kev's brother ... for those who don't know Dad... she was joking!!
Sunday, October 21, 2007
heated up!
Since the unexpected check-in to the 8th floor, Kev has found himself quite drained and unmotivated. Although we found the remote, the TV seems to only have one channel (The Food Channel) we've watched every episode thrice! If anyone can find the recipe for the BBQ chicken biscuits that took 5th place at the National Chicken Cooking competition, Kev would really like it.
The weekend was quite uneventful until Kev spiked a 101.5 temperature (36 celsius for those across the water). If Kev were a dog this would not have been a problem since 101.5 is the normal body temperature of an adult dog, but we know Kev is not a dog. We were told to have Kev admitted within 60 minutes upon discovery of a temperature above 100, luckily he was admitted 32 hours prior so a little tylenol brought things back to normal.
Another side update, Dad (a.k.a. Road Dawg) successfully returned from Orlando with Kev's jeep and belongings. It took , one breakfast buffet, a comfortable night at the Interstate Inn, and a mere 17hours to get home. He made it just in time to check Kev's temperature with a highly technical ear-mometer. (It was like watching little kid trying to poke the straw through a capri-sun... hilarious!)
The weekend was quite uneventful until Kev spiked a 101.5 temperature (36 celsius for those across the water). If Kev were a dog this would not have been a problem since 101.5 is the normal body temperature of an adult dog, but we know Kev is not a dog. We were told to have Kev admitted within 60 minutes upon discovery of a temperature above 100, luckily he was admitted 32 hours prior so a little tylenol brought things back to normal.
Another side update, Dad (a.k.a. Road Dawg) successfully returned from Orlando with Kev's jeep and belongings. It took , one breakfast buffet, a comfortable night at the Interstate Inn, and a mere 17hours to get home. He made it just in time to check Kev's temperature with a highly technical ear-mometer. (It was like watching little kid trying to poke the straw through a capri-sun... hilarious!)
Friday, October 19, 2007
thirsty?
Home from the Hospital for just a day before Kevin checked back into room 836 at GMC (just as we left it, but someone stole the remote) Kev had one crazy night and even a crazier day. The afore mentioned Neupogen shot was scheduled for sometime between 12 - 4 today, but we just narrowly beat the clock. Kev, being neutropenic, was very week. His throat is soar, which makes swallowing very hard so he was not drinking as much as he was supposed to. This, combined with other uncontrolable factors, left Kev dehydrated and ready for check in.
His vitals are still o.k., plasma and whites are a bit low, but not uncommon. Kevin is going through a very rough stint in this first cycle of treatment. He took a 36 hour drip of Methotrexate, a very strong chemo, but he continually impresses doctors, family, and friends of his strength throughout this stage of treatment.
On a different note... Dad flew out tonite from Philly via Scranton to pick up kevs car and other things. He should be in Apopka around noon -ish tomorrow for anyone interested in grabbing some lunch with him. I would give out his number, but once we put his cell number on a golf ball with "if found please call" on it and some drunk called at an unreasonable hour.. so we don't do that anymore.
His vitals are still o.k., plasma and whites are a bit low, but not uncommon. Kevin is going through a very rough stint in this first cycle of treatment. He took a 36 hour drip of Methotrexate, a very strong chemo, but he continually impresses doctors, family, and friends of his strength throughout this stage of treatment.
On a different note... Dad flew out tonite from Philly via Scranton to pick up kevs car and other things. He should be in Apopka around noon -ish tomorrow for anyone interested in grabbing some lunch with him. I would give out his number, but once we put his cell number on a golf ball with "if found please call" on it and some drunk called at an unreasonable hour.. so we don't do that anymore.
Thursday, October 18, 2007
homer
Today was the day to remove all the tubes, needles, and butt gowns to break out. If you wanna try and "feel Kevs pain" put a peice of duct tape on a particular hairy part of your body, leave it on four for days, then have someone else take it off!
Kev rolled home with Ma, it was a tough morning and long day. He arrived home with a stack of prescriptions and pages of directions. The plan is to keep him home and sterile. He does have to go into the Hospital once a day til Monday to get a Neupogen shot. This shot contradicts the last post that mentioned he would not be receiving any shots to boost his white blood cells. Not quite certain what changed, but it is defenitly good news!
Although he has lost his appettite he still gets cravings. Tonite for dinner he wanted pizza & wings from Bob's Subs ( sharon is to blame for the fact we got pizza from a sub shop, East End is better, but obviously not as good as the pizza from that weird little town in London!) Bare in mind, when you see pictures of Kevin on the site in the future and he looks like he is losing weight, that may not be the case. Due to his loss of appetite but eccentric cravings it may be we the family are just getting fatter!!
Kev rolled home with Ma, it was a tough morning and long day. He arrived home with a stack of prescriptions and pages of directions. The plan is to keep him home and sterile. He does have to go into the Hospital once a day til Monday to get a Neupogen shot. This shot contradicts the last post that mentioned he would not be receiving any shots to boost his white blood cells. Not quite certain what changed, but it is defenitly good news!
Although he has lost his appettite he still gets cravings. Tonite for dinner he wanted pizza & wings from Bob's Subs ( sharon is to blame for the fact we got pizza from a sub shop, East End is better, but obviously not as good as the pizza from that weird little town in London!) Bare in mind, when you see pictures of Kevin on the site in the future and he looks like he is losing weight, that may not be the case. Due to his loss of appetite but eccentric cravings it may be we the family are just getting fatter!!
Wednesday, October 17, 2007
treatment
It was a rough night, but we made it through. Perhaps Kev even got some sleep. Lots of questions were asked and answered so Kevin could "have some sort of plan". It was determined by a new doctor (who looks like the chubby fella in that old 'laurel and hardy' comedy show) that we had to stay one more night in the Hospital before a weekend home.
Although Kev is Neutropenic, he cannot receive the plasma booster shots that would lessen his time in neutropenia because his chemo schedule is so intense and overlaps. We also learned today that there will be at least one whole week of chemotherapy the the spine. This will be further determined after a spinal tap, but there are concerns about a numb spot on his face.
Kev is loosing some weight and now even loosing his appetite... but he's still looking good.
Although Kev is Neutropenic, he cannot receive the plasma booster shots that would lessen his time in neutropenia because his chemo schedule is so intense and overlaps. We also learned today that there will be at least one whole week of chemotherapy the the spine. This will be further determined after a spinal tap, but there are concerns about a numb spot on his face.
Kev is loosing some weight and now even loosing his appetite... but he's still looking good.
Tuesday, October 16, 2007
boned!
We recently learned the cancer is in the bone marrow. This information phased no one on the staff and actually expected. With Burkitt's Lymphoma it is quite commen to see cancer cells in the marrow. Treatment will continue as is for now through the first cycle.
Kev is currently enthralled in a 36 hour chemo drip which ends tomorrow around 4pm. His status/vitals will be re-evaluated after the final bag-o-treatment to determine if he can spend the weekend at home.
Kev is currently enthralled in a 36 hour chemo drip which ends tomorrow around 4pm. His status/vitals will be re-evaluated after the final bag-o-treatment to determine if he can spend the weekend at home.
Monday, October 15, 2007
back in...
Kevin is back on the 8th floor (geisinger medical center) to continue the chemotherapy. We came on Saturday for a quick poke, but the port that was placed in his chest to "facilitate" the chemo treatment is a little bugger. Albeit, taking a few tries before it's done right seems to be par for the course lately, someone jabbing a needle into an unseen target in your chest can be a bit unsettling. Saturday's target practice was short with only two pokes and two squeezes (one for sharon, another for lauren). Today was a hatrick, three pokes and three squeezes (mom took all three)!
Kevins blood results came back Neutropenic (look it up) so he is a little weak. Hopefully he will be up to posting in the near future. If not we'll keep ya posted.
Kevins blood results came back Neutropenic (look it up) so he is a little weak. Hopefully he will be up to posting in the near future. If not we'll keep ya posted.
Subscribe to:
Posts (Atom)